Monday, March 31, 2008

Inconclusive...

That was the word that I most feared... inconclusive.


I finally mustered up the strength and courage to call my Dr.'s office and follow up on the genetic/chromosomal analysis that was done on Eli's body. They told us that they would have results in 4 weeks and since it's been almost 6, I decided to call... and wait over 3 long hours to have my call returned. Good right? Wrong. The tissue is forever listed as "failure to grow".


When I first discovered that my baby had in fact died, I was told that it looked like there was a mass on the brain. That, I had no trouble accepting. The next day I was told that it was likely a chromosomal issue. That was a slightly harder pill to swallow knowing that I would have to wait even longer but I was assured that they could run several types of tests. And now, now, I have zero answers.


There are a number of reasons as to why this could be but it doesn't really matter WHAT the reason is. I will never, ever, ever know why Eli's heart stopped beating. I will not know if it was genetic or chromosomal, if it was something that he inherited from us or a "fluke" of nature. I will not know if it was caused by a problem in my body. I will not know if any future pregnancies could be impacted the same way. It could have been collected wrong, stored wrong, tested wrong, he could have been gone too long - but I know I delivered about 46 hours after he died.


I know that there is a fine line between getting to spend time with him, after delivery, and the sacrificing of a "fresh specimen." It's kind of a yucky thing but the fact of the matter is, the longer his tiny body was at room temperature, the quicker the cells died and started decomposing. His body was not placed in the "cooler" when I was sent for emergency surgery, his body wasn't rushed away from me at any point. That's all part of the grieving process that the hospital allowed us to go through. It would have been a trade off - memories, foot prints, holding him, photos or maybe knowing his genetic make up and maybe knowing why his heart stopped and... maybe not. I am glad that we have the memories that we do. I would hate to forget what his fingers, feet or face looked like, but I'm honestly torn just a little bit. I guess a part of me feels like I was selfish about the time that we were given and that we took. However, the other part of me knows that it's selfish to also want to know what happened. Ugh... I can't have it both ways. That would have been too perfect if there could have been anything "perfect" about this situation. I just find it so crazy that they had my baby's entire body and yet, they can't tell me what happened. However, science can tell us why or how someone died 100 years ago. Frustrating.


I'm sad and frustrated and disappointed that we will never know. I was hoping that this would be the last chapter of this book but it just feels very unfinished right now. We struggled with even deciding for sure to go ahead with the analysis beyond the basic autopsy, which came out clean, and now I'm kind of regretting doing it. There is a tiny part of me that is kind of freaking out about the fact that in spending so much time - if 4 hours can be considered "so much time" - that could be the reason the specimen failed to grow. Ugh, such a place to be right now.

I know ultimately that it was and is all in God's hands. I am working on the peace that's going to be necessary to get over this hurdle but God has a history of turning impossible situations into new beginnings - "we know that in all things God works for the good of those who love him, who have been called according to his purpose."

7 comments:

Kara said...

I love that picture of little Eli and your hands! That says it all. It is devastating to have the test come back and the tissue to not have grown - that happened to us too and they took Tyler right after I delivered him so we would have a better chance of getting good tissue. Be thankful for the memories you got to have with him, I think those are more important in the long run. I'm sorry that you didn't get the answer that I know you so desperately need. Romans 8:28 is the verse that God put in my heart even before I knew Tyler was gone, and it's the same one that echoes through my mind every day. Peace and love
Kara

Kaylee said...

I was thinking the same thing Kara said when I was reading your post. Even if you wouldn't have spent that precious time with Eli, you still might not have the answers you are longing for. From the pictures I have seen and the posts you have written it is obvious that you made the right decision to keep your baby with you and say goodbye the way you did. That is what will bring you comfort. Even if you had the answers right now, you would still be missing your baby. In my own grief I sometimes get hung up on the unimportant details, like 'did he die right away, was he scared, did he ever wake up, what if I would have called him, what if his friend would have been home?' The answers to those questions won't change a thing. Truth is, I miss my brother. The answers and the questions are distractions that keep me from facing my darkest feelings of pain and ultimately keep me from relying on God. When I strip away the distractions (questions and the what ifs) all I can do is lean on Him to give me strength, healing, faith and peace. I know you are growing through this and growth is one of the most painful things. But our growth gives glory to God and that's why we're here!
(sorry so long!)

Jamie said...

Kristi--I am so sorry you didn't get any answers. Sending you some peace and love.

Breanna said...

Kristi dont blame yourself. and you are not selfish for wanting those precious hours with eli. im sorry you didnt get the answers you were hoping for. you are a very strong person and god has big plans for you.

Anonymous said...

Kristi- I have been thinking about you. I love to read your Blog. You are wonderfully gifted at getting the words out. That picture of you holding Eli is just amazing.

Unknown said...

That last comment was from me, Mary. I didnt' want you to think someone was stalking you. :oP

La Nuit Étoilée said...

you are not the least bit selfish.